Joseph is doing great physically! He isn't holding anything back and to watch him be "normal" still completely amazes us after all this time. We can thank our donor family for that! They gave him this most wonderful summer season! The doctors, nurses, and transplant team at MUSC is responsible for his amazing outcome as well! I recently read an article about MUSC that I'd like to share with you. They deserve this recognition.
Thursday, June 25, 2009
Summer Fun!
Joseph is doing great physically! He isn't holding anything back and to watch him be "normal" still completely amazes us after all this time. We can thank our donor family for that! They gave him this most wonderful summer season! The doctors, nurses, and transplant team at MUSC is responsible for his amazing outcome as well! I recently read an article about MUSC that I'd like to share with you. They deserve this recognition.
Monday, June 1, 2009
Joseph Made His Wish!
I just wanted to share a little bit about Joseph's wish that was granted by the Make A Wish Foundation. Joseph's wish was to go to Disney World. We went and stayed where all the "Wish Kids" stay...Give Kids The World Village. It is a magical place that completely spoils kids for the week they are there. There was a Castle of Miracles, a beautiful carousel, pony rides, a Winter Wonderland Party complete with a visit from Santa and snowflakes, a Pirates and Princess Party, a gift fairy that visited every day, and a life size Candy Land playground and party! These are just to name a few. It was the best week you can imagine. It was just what my family needed...happy, happy times and new memories. We are all still talking about it! We did have one bad thing happen...Joseph came down with the flu the day after we visited the Magic Kingdom! He was so sick. I admit I got a little scared for him because he couldn't hold anything down. We spent one morning at Urgent Care and then a day in the Pediatric E.R. at the Children's Hospital in downtown Orlando. Joseph was dehydrated and weak, had fever and chills. They took great care of him at the hospital and gave him medicine for nausea. Thirty minutes after this wonder drug was administered, Joseph's condition turned around completely. They did blood work, xrays, and an EKG. They confirmed that he had type B flu. He recovered quickly and we continued our vacation as if nothing had happened! We extended our stay by two days so we were happy and the kids were still able to do all they wanted to! We just can't thank the Make A Wish Foundation enough and the staff (plus volunteers) at GKTW Village for the kindness and wonderful treatment we received while there. It was a once in a lifetime experience. I wish we could go back and do it all over again.
Thank you for continuing to keep us in your prayers. Please don't forget our donor family. They need your prayers even more than we do. Thanks for checking in!
Until next time,
Angela, Stephen, Joseph, and Abigail